As we approach Christmas and the New Year we would like to express our sincere gratitude and appreciation for all the love, generosity, kindness and help which we have received since the launch of our Fundraising campaign to Help Rose Bloom. At the time of print we are almost at the halfway point of our fundraising target.
In the past six months Rose has made some great advances for
a four year old living with Type 2 Spinal Muscular Atrophy (SMA).
She has received her first wheelchair which has given her great independence when out and about with her big sister Kate and her parents Karen and Thomas. The wheelchair can be operated both manually and by electric motor. Rose uses a combination to ensure that she develops her upper body muscle strength which is important for her condition.
The funds raised have also allowed Rose the opportunity to participate in intensive weekly physiotherapy sessions which have helped her enormously. In the past few weeks Rose has managed to stand independently for almost 30 seconds. This may not sound amazing for a four year old but for Rose this is the result of three years of physiotherapy, perseverance and determination on her behalf.
Rose has also recently begun Therapeutic Horse Riding lessons on the advice of her Physio Team. These weekly lessons are assisting with her posture which has been severely impacted by Scoliosis. Rose has recently undergone her pre surgery assessment and it is hoped surgery to correct her Scoliosis will take place in early January, 2022.
Rose is also enjoying the company of her friends at preschool since they returned to class in September. Next September will see Rose join her sister Kate and begin her journey through Primary School at Clogher NS. Planning for this has already begun and we are very grateful to Clogher National School Staff and Management for their help with these preparations.
The New Year will see alterations to the family home begin to facilitate a ground floor Bedroom and Bathroom for Rose along with widening hallways and living spaces to facilitate Rose and her wheelchair. The resurfacing of the footpaths and driveway around the family home will also begin which will give Rose more freedom and most importantly safety in her home environment.
Finally we have been overwhelmed by the generosity of people from all over Ireland and indeed people from other parts of the world. We would like to thank everyone who helped organise events and fundraisers along with everyone who so generously donated to Help Rose Bloom. We will be forever grateful.
Please know that you have made a little girls life easier and afforded her the opportunity to advance and Bloom.
Thank you to Mags and the Team at Connect for giving us this space freely and generously to communicate with everyone.
We wish you all a very Happy, Healthy and Peaceful Christmas and a wonderful New Year.
Rose, Kate, Karen and Thomas O’ Flaherty.